There seems to be some hope in the past decade or so for improved outcomes. A prominent neurologist told us recently that in his experience patients with MS who are now using immune-suppressant drugs have experienced a slower progression of the disease. Early in our marriage, too, she was diagnosed with Hashimoto’s disease, an autoimmune disease which affects the thyroid. Studies find that a significant number of patients with MS also have Hashimoto’s disease. She was extremely active through her twenties and early thirties, able to do cross-country skiing without any signs of fatigue, doing all kinds of crafts, even taking adult swimming courses and adult piano lessons.
Other than one incident of bowel urgency, she did very well, with no stamina or balance difficulties. I have photos of her negotiating the Irish turnstiles with no assistance. There were some concerns by this time about managing urinary urgency, she checking for access to toilets on the tour buses, etc. That planning for emptying the bladder was more of a problem by this time than any bowel problems. With a short course of prednisone tablets, this symptom disappeared and, except for cataracts much later, she never experience visual disturbances.
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